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Danny Boy's Adventures

One boy's expedition living with Duchenne's

A Royal Day in England

Today, was a royal day in England. We made another bright and early start to our day. We successfully made our way into the center of London using Uber. We have found Uber to be the best price for travel so far. The conversations with our drivers are entertaining  as well.

Continue reading “A Royal Day in England”

A Stroll through London

Today we enjoyed a stroll through London.

Danny Boy woke up to his daddy serving him cherries in bed! We decided to take our time this morning, allowing Danny to sleep until almost 11! After fourteen hours of sleep he woke cheerfully to cherries and conversation with Miss Emmy (who had been awake for hours waiting for him).

Continue reading “A Stroll through London”

A Trip to Qxford

The day started bright and early as we made a trip to Oxford. But…. Before I share more about that, let’s talk about fairy tales!

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We Arrived in London! 

What an amazing flight over to Europe! We were greeted by Delta officials and treated incredibly special from the first moment we arrived all the way to the end! So many have shown Danny Boy love! I am richly rewarded to see the best of humanity in these moments. To see God show himself through others. It’s a humbling place to walk and yet so incredibly rewarding!  Continue reading “We Arrived in London! “

The night before our big trip…

The night before our big trip… Suitcases line the hall, checklists have been checked twice and Danny Boy sleeps by my bed because he is too excited to sleep in his room. If you haven’t heard, Danny boy is going to Europe! Continue reading “The night before our big trip…”

Epic!- My favorite App for children

I’m not a huge fan of app’s for children, but Epic! is making me a fan of their reading app. First, let me disclose that I was not asked to write a review and have not been compensated in any way from Epic!. Continue reading “Epic!- My favorite App for children”

What is Duchenne Muscular Dystrophy (DMD)?

I am often asked, “What is Duchenne Muscular Dystrophy (DMD)?” I have answered this question for family, friends, and even strangers. My answer often sounds like a script I’ve memorized. According to the MDA, “Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy.”

Last week, Danny Boy asked me, “Momma what is DMD?” I didn’t have a script for that moment. I spoke so fast I don’t even remember the explanation I gave him.  Continue reading “What is Duchenne Muscular Dystrophy (DMD)?”

Acceptance

Life is full of things we must learn to accept.

Danny Boy had testing today that included an IV for 2 hours.  I am proud of how well he accepts the tests, blood work, machines, hospital visits, etc…. Continue reading “Acceptance”

Adventures in the Kitchen

Danny boy has been enjoying his adventures in the kitchen. Buttering bread, helping clean the table, making Christmas cookies, and the list could go on and on.

This year I decided we would start a new tradition, the 25 days of sweets. And for the record, I don’t think anyone needs that many sweets! It’s been a challenge to complete. Danny has worked beside me. We have shared giggles, messes, and memories in the process. Continue reading “Adventures in the Kitchen”

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